Number of potential organs available per year by actual vs. unrealized potential, in thousands*
With generous support from the Laura and John Arnold Foundation, we partnered with Bridgespan and the Leonard Davis Institute of Health Economics at the University of Pennsylvania to perform an objective, external analysis of the US deceased donation system. We found inefficiencies in the organ donation system, which, if addressed, can more than double the number of deceased donor transplants each year.
The key findings include identifying perverse policy and financial incentives which suboptimize organ recoveries, as well as unchecked OPO underperformance. This should be the top priority of every patient and organ donation advocate in the country.
Our biggest project as HHS Innovator in Residence was to perform a comprehensive, external analysis of the OPO industry and to recommend reforms that would dramatically increase patient access to transplant. With generous support from the Laura and John Arnold Foundation, we partnered with the Leonard Davis Institute of Health Economics at UPenn and The Bridgespan Group, and found opportunities to double the number of transplants performed. We chose to publish these findings in the American Journal of Transplantation.
ORGANIZE was awarded an Innovator in Residence (IIR) position at the U.S. Department of Health and Human Services to identify innovative pathways to increase organ donation and transplantation. Anjelika Deogirikar served as the IIR and developed the idea for the Kidney Transplant Learning Center, an online tool to enhance patient education by ensuring informed transplant and living donation decision-making.
On June 13, 2016, ORGANIZE co-hosted the White House Organ Summit to launch some of the most impactful innovations in organ donation history. The Summit celebrated the role of science and technology in reducing the organ transplant waiting list and attracted $300 million of investment in organ transplantation research.
Together with Jennifer Erickson (Assistant Director of Innovation for Growth at the White House Office of Science and Technology Policy) and DJ Patil (United States Chief Data Scientist) we hosted a Facebook Live on the official White House Facebook page. The conversation was about the power of technology and data to transform the organ donation system. We used the opportunity to announce some of the most exciting commitments from the White House Organ Donation Initiative, including our partnership with Microsoft to opensource our donor registry technology.
Need information about living donation? Where do you go? Too many options can be paralyzing, especially if you don’t know which to trust. As the IIR, Anjelika created and spearheaded the intiative to organize (pun-intended) all of the disparate information about living donation and launched a coalition to create a national clearinghouse. Partners include: Beth Israel Deaconess Medical Center, Duke University School of Medicine, Emory University, Johns Hopkins University, Mount Sinai Hospital, Northwestern University, Temple University, and the University of California Los Angeles.